Miss Courtney continues to struggle with grand-mal seizures. This Mama continues to spend her nights dozing in the comfy chair in her room. The EMFIT alarm works well and I have been able to intervene making sure her airway is clear and she is as comfortable as possible. Big Brother, Daddy … [Read more...] about hope is better than sleep…
I smile because she smiles…
It has been quite a day for my warrior girl. It all began at 3 a.m. with the EMFIT monitor going off and this Mama running down the stairs to help her girl during a monster seizure that included toni-clonic jerks that I had trouble controlling which resulted in some pretty banged up knees … [Read more...] about I smile because she smiles…
a moment for some news…
Hey Everyone, Just wanted to slip in a quick update on some goings on. First up, Patrick Wray, a wonderful singer and family friend will be playing this Saturday, March 22, 2014 at The Main Street Pub in Clifton, VA. His set will start around 9 p.m. He will be playing to raise money to … [Read more...] about a moment for some news…
pretty, happy, funny, real ~ 2014 ~ vol. 8
{pretty, happy, funny, real} I woke up tired today. It's a common enough occurrence these days. I know I will need to take it slow today and hopefully Miss Courtney will cooperate and we can both take a nap this afternoon. We shall see what the day delivers. My daily life consists of … [Read more...] about pretty, happy, funny, real ~ 2014 ~ vol. 8
coffee for your heart ~ #11 ~ God is BIGGER!
Good Morning one and all! I hope my little love letter finds you well and meeting the goals of your day. I have had about six hours of sleep in the last 36 hours so I am feeling a little punchy but it's all good. Miss Courtney has a smile on her face and she is looking and sounding more like her … [Read more...] about coffee for your heart ~ #11 ~ God is BIGGER!
a few prayers for Courtney…
Hey All, I am glad I caught these images earlier today of my Courtney. She has had three major seizures since then and is finally asleep. I pray the rest of the night is quiet. If you feel moved, say a little prayer for my girl tonight. … [Read more...] about a few prayers for Courtney…
