Jerry’s parents got into town last night for a visit with Miss Courtney. They brought Jerry’s older sister, Auntie Jo, along for the ride. It has been a lovely 36 hours filled with lots of smiles from Miss Courtney and even a few giggles.
We all know that this will probably be the last time they are able to be with their granddaughter, so the hugs and kisses are abundant. There have been a few tears here and there as well, but overall, we are concentrating on the joy. Miss Courtney is now weighing 75 pounds and beginning to show signs of real fatigue with changes in her breathing pattern throughout the day as well as her sleep patterns and level of general comfort. So we listen to our girl and love on her as she allows.
I shared many of these photos on Facebook and instagram already but wanted to share them here as well to remind my future self that love always wins. No matter what happens, how or when, we loved our Courtney with all we had. Her smile lights up the room and makes my heart bloom. The thought of not seeing it, breaks me. But what a privilege it is to love her.
and taking care of her final arrangements**