|“Mama…this girl’s hungry!”|
|Courtney has much to say these days…|
Hello Dear Friends,
I am so sorry I haven’t been here this last week. I didn’t mean to worry anyone. Life has been quite full with lots of doctor’s visits, blood draws, an MRI and a new daily routine for our girl.
Miss Courtney has been doing well this past week. She is only having one major seizure event a day along with many small petite-mals which is a great improvement. We have only had to intervene twice with her new Ativan protocol that helps stop the cluster seizures which are the same type of seizures that put her in the hospital over Easter. She has handled the increased med levels well. Her appetite is returning and she is slowly re-gaining some of the weight she lost in the hospital.
Life looks a little different these days.
Courtney must be monitored during her waking hours in case she has a silent seizure. This means that someone is with her at all times. We also have to monitor everything she eats and everything that comes out, (if you know what I mean).
Basically our home has become a little mini pediatric hospital unit. No, there is no nurse just Mama, Daddy and her big brother as well as a few family members who come and sit with her so I can run errands.
It’s a different way of living for sure BUT the grace that comes…oh the grace…
|Just chillin with Mama…|
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