I know I am taking a little bloggy break but I felt the need to step into this space for just a moment to beg a few prayers for my girl.
We found out yesterday at our regular Neurology appointment that there may be a problem with Miss Court’s VNS device. More tests are being run and we will know more on Friday. The two outcomes are either replacing a faulty device, meaning neurosurgery with a brief hospital stay OR the device responds to the new settings and we reprogram working through the kins over the next three weeks.
Right now she’s experiencing a higher volume of seizures which could be because of some issue with the VNS or something completely different.
All I know is that I am tired, she is tired and I just want to know how to help her. I have to say that’s the most difficult part of parenting a child like Courtney. Most of the time there is nothing to be done but waiting and watching.
So, that’s what we will do, wait and watch and pray that we have an answer soon.
I’ll let you know when I know…thank you for once again surrounding my girl with love…there are no words to fully convey my appreciation to you all…
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